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The UK Malignant Hyperthermia Registry

What is the UKMHR?

The UK Malignant Hyperthermia Registry is a secure database of all known and suspected cases of a condition called Malignant Hyperthermia (MH), which is managed by the MH Investigation Unit based at the University of Leeds.

It is currently the world’s largest database dedicated to the condition and an essential resource for medical research and treatment.

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Who should sign up?

Please sign up to the registry, using the form below if you are one of the following:

  1. An existing MH patient. We may already have your details but this will help us ensure our records are up to date.
  2. A patient who is suspected of having MH
  3. A relative of a patient with confirmed, or suspected, MH.

If you have any questions on any aspect of the UKMHR, or you would like help to complete the form, please call our patients and relatives helpline on 0113 20 65270 or email us at:

Sign up to the UK Malignant Hyperthermia Registry (UKMHR)

The UKMHR is a secure database of c. 12,000 people who have confirmed or suspected MH.